#sjogrenssyndrome

Oxford defines SELF-CARE as “the practice of taking action to preserve or improve one's own health” ⠀⠀
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and ⠀⠀
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“the practice of taking an active role in protecting one's own well-being and happiness, in particular during periods of stress”⠀⠀
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The side effects of a lack in SELF-CARE can disrupt your healing process. It goes beyond the physical. The symptoms of autoimmune diseases are enough to make you give up already, but why not take a chance at THRIVING? You’ve got nothing to lose but opportunity! Take a chance at life. Take a chance at changing your story TODAY!⠀⠀
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@ithrivenation, SELF-CARE is simply the actions you take to achieve [your]optimal wellness. We are giving you the power to participate in your healing and coping. We are here to help you cultivate a lifestyle of #selfcare and foster healthy personal and emotional wellness!⠀⠀
⠀⠀
We are excited to launch our #ithrivewithselfcare campaign and challenge to inspire you to deliberately and intentionally design and LIVE your BEST life! SUPPORT our ‘Project Self’ Initiative! ⠀⠀
⠀⠀
DONATE to @ithrivenation today! LINK IN BIO!!!⠀⠀
⠀⠀
Don’t forget to chat with us on IG stories! Let’s go!
Oxford defines SELF-CARE as “the practice of taking action to preserve or improve one's own health” ⠀⠀
⠀⠀
and ⠀⠀
⠀⠀
“the practice of taking an active role in protecting one's own well-being and happiness, in particular during periods of stress”⠀⠀
⠀⠀
The side effects of a lack in SELF-CARE can disrupt your healing process. It goes beyond the physical. The symptoms of autoimmune diseases are enough to make you give up already, but why not take a chance at THRIVING? You’ve got nothing to lose but opportunity! Take a chance at life. Take a chance at changing your story TODAY!⠀⠀
⠀⠀
⠀⠀
@ithrivenation, SELF-CARE is simply the actions you take to achieve [your]optimal wellness. We are giving you the power to participate in your healing and coping. We are here to help you cultivate a lifestyle of #selfcare and foster healthy personal and emotional wellness!⠀⠀
⠀⠀
We are excited to launch our #ithrivewithselfcare campaign and challenge to inspire you to deliberately and intentionally design and LIVE your BEST life! SUPPORT our ‘Project Self’ Initiative! ⠀⠀
⠀⠀
DONATE to @ithrivenation today! LINK IN BIO!!!⠀⠀
⠀⠀
Don’t forget to chat with us on IG stories! Let’s go!
Perfect for today! Friday the 13th😂 @danichgo thank you for sending me this some time ago and giving me a much needed laugh!😆
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I need this laugh again. It’s been wild and I’m trying to keep up. I don’t have a have a car. My older kids each have/had a car. My daughters car died and she’s my primary driver. My sons car needs thousands of dollars of work to pass emissions or can’t drive after January 1st. Then his cell phone broke. I’m also soaking up information on my new diagnosis as well as Callie’s and trying to identify, develop and implement new routines and coping/communication skills for the littles. Behind on bills. Found out my meds WITH Medicare will cost me over $1900.00 monthly out of pocket because oh yeah I am getting divorced. Guess who won’t be staying on meds without state help!💁🏻‍♀️ Also having electrical and plumbing problems while trying to sort hosting Xmas. And Duncan’s bday party/sleepover is tonight😳He turns 9 on the 20th. Then there’s doc appts and all the other day to day. Woah that became a rant, oof.🤪
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I’m so grateful for humor and simple things and friendship. Maybe today is the day I can trick the Universe and change the course of things, lolol #laughorcry #both #firstworldproblems #reversepsychology #fridaythe13th #depression #anxiety #cptsd #spoonieproblems #spoonielife #abuse #survivor #chronicpain #invisibleillness #autoimmunedisease #butyoudontlooksick #spoonie #spoonies #spoonies_united #lupus #fibromyalgia #raynauds #sjogrenssyndrome #arthritis #spinalstenosis #facetarthritis #osteoarthritis #degenerativediscdisease
Perfect for today! Friday the 13th😂 @danichgo thank you for sending me this some time ago and giving me a much needed laugh!😆
.
I need this laugh again. It’s been wild and I’m trying to keep up. I don’t have a have a car. My older kids each have/had a car. My daughters car died and she’s my primary driver. My sons car needs thousands of dollars of work to pass emissions or can’t drive after January 1st. Then his cell phone broke. I’m also soaking up information on my new diagnosis as well as Callie’s and trying to identify, develop and implement new routines and coping/communication skills for the littles. Behind on bills. Found out my meds WITH Medicare will cost me over $1900.00 monthly out of pocket because oh yeah I am getting divorced. Guess who won’t be staying on meds without state help!💁🏻‍♀️ Also having electrical and plumbing problems while trying to sort hosting Xmas. And Duncan’s bday party/sleepover is tonight😳He turns 9 on the 20th. Then there’s doc appts and all the other day to day. Woah that became a rant, oof.🤪
.
I’m so grateful for humor and simple things and friendship. Maybe today is the day I can trick the Universe and change the course of things, lolol #laughorcry #both #firstworldproblems #reversepsychology #fridaythe13th #depression #anxiety #cptsd #spoonieproblems #spoonielife #abuse #survivor #chronicpain #invisibleillness #autoimmunedisease #butyoudontlooksick #spoonie #spoonies #spoonies_united #lupus #fibromyalgia #raynauds #sjogrenssyndrome #arthritis #spinalstenosis #facetarthritis #osteoarthritis #degenerativediscdisease
Best foods for blood circulation 👍
Best foods for blood circulation 👍
This is what life is like living with chronic pain and invisible illnesses. There’s always that one day when you think you’ve been able to come to terms with what you’ve already been diagnosed with, only to be told you have something else on top of your already growing list. My latest diagnosis is that of combined sleep apnea.
#chronicillness #chronicpainwarrior #invisibleillness #fibromyalgia #sjogrenssyndrome #sleepapnea #cpap
This is what life is like living with chronic pain and invisible illnesses. There’s always that one day when you think you’ve been able to come to terms with what you’ve already been diagnosed with, only to be told you have something else on top of your already growing list. My latest diagnosis is that of combined sleep apnea.
#chronicillness #chronicpainwarrior #invisibleillness #fibromyalgia #sjogrenssyndrome #sleepapnea #cpap
PSA: Please take your meds. Don’t do what I did. Tonight’s #painsomnia was actually avoidable. Whatever your meds are, there’s a reason you’re on ‘em! Please take your meds.

Phone broke, managed to get a decent pre-loved replacement phone. Promptly forgot to reprogram medication alerts.

My pain patch patch from last week worked so well, I was three days LATE in applying fresh one. I didn’t feel it right away... but now the flu-like burning in every cell of my body is probably spiking my blood pressure.

Please take your meds!! #sjogrenssyndrome 
#autoimmunedisease 
#rheumatoidarthritis 
#thisissjögrens
#thisissjogrens 
#chronicillness 
#spoonie
#spoonielife 
#chronicpain
#chronicpainsucks 
#chronicpainsucksass
#paincentral
#painsomnia 
#takeyourmeds 
#takeyourmedsplease 
#publicserviceannouncement
#endpillshaming
PSA: Please take your meds. Don’t do what I did. Tonight’s #painsomnia was actually avoidable. Whatever your meds are, there’s a reason you’re on ‘em! Please take your meds.

Phone broke, managed to get a decent pre-loved replacement phone. Promptly forgot to reprogram medication alerts.

My pain patch patch from last week worked so well, I was three days LATE in applying fresh one. I didn’t feel it right away... but now the flu-like burning in every cell of my body is probably spiking my blood pressure.

Please take your meds!! #sjogrenssyndrome
#autoimmunedisease
#rheumatoidarthritis
#thisissjögrens
#thisissjogrens
#chronicillness
#spoonie
#spoonielife
#chronicpain
#chronicpainsucks
#chronicpainsucksass
#paincentral
#painsomnia
#takeyourmeds
#takeyourmedsplease
#publicserviceannouncement
#endpillshaming
WHO WE ARE:  a 501(c)(3) nonprofit organization determined to help people with autoimmune diseases cultivate a wellness lifestyle and achieve optimal health with a little, maybe a lot of self-care! We are passionate about self-care and we believe with support and perseverance, we can live our best lives, regardless of diagnosis! ⠀
⠀
OUR MISSION:  advancing the lives of individuals diagnosed with an autoimmune disease by fostering personal and emotional wellness through self-care services, products and tools! ⠀
⠀
WHAT DO WE DO:  spread awareness about autoimmune diseases, give hope to those battling autoimmune disease, educate people on the benefits of self-care and wellness, provide resources and tools on self-care practices, services, activities and products and curate self-care events, workshops and outreach opportunities! ⠀
⠀
Welcome to #ithrivenation!🍃 You are surrounded with love and support of others [just like you] who are determined to THRIVE regardless of diagnosis AND people who want to help by any means possible! We believe it takes a community for one person to thrive. “As I thrive, you thrive, WE THRIVE”! ⠀
⠀
To support our initiative, click on #LINKINBIO!
WHO WE ARE: a 501(c)(3) nonprofit organization determined to help people with autoimmune diseases cultivate a wellness lifestyle and achieve optimal health with a little, maybe a lot of self-care! We are passionate about self-care and we believe with support and perseverance, we can live our best lives, regardless of diagnosis! ⠀

OUR MISSION: advancing the lives of individuals diagnosed with an autoimmune disease by fostering personal and emotional wellness through self-care services, products and tools! ⠀

WHAT DO WE DO: spread awareness about autoimmune diseases, give hope to those battling autoimmune disease, educate people on the benefits of self-care and wellness, provide resources and tools on self-care practices, services, activities and products and curate self-care events, workshops and outreach opportunities! ⠀

Welcome to #ithrivenation!🍃 You are surrounded with love and support of others [just like you] who are determined to THRIVE regardless of diagnosis AND people who want to help by any means possible! We believe it takes a community for one person to thrive. “As I thrive, you thrive, WE THRIVE”! ⠀

To support our initiative, click on #LINKINBIO!
Well I had my surgery. Recovery isn't going well. I've had two trips to the er and a doc visit since Monday.
This Endo belly needs to calm tf down.

#autoimmunedisease #vegan #sjogrenssyndrome #vegansofig #sjogrens #autoimmunewarrior #autoimmune #endometriosis #endometriosisawareness #endoawareness #endo #compassion #fear #excision #stigmafighter #vanlifediaries #spoonie #awareness #endobelly #spoonielife #anxiety #invisibleillnessawareness #invisibleillness #ptsdawareness #fatigue #chronic #vanlife #legalizevanlife #chronicpain
“50 million Americans suffer from autoimmune disease”. YOU are one of them! And life does not end at suffer when you deliberately choose to thrive!⠀
but first, ⠀
you ⠀
are⠀
not⠀
alone! ⠀
⠀
Welcome to #ithrivenation!🍃
“50 million Americans suffer from autoimmune disease”. YOU are one of them! And life does not end at suffer when you deliberately choose to thrive!⠀
but first, ⠀
you ⠀
are⠀
not⠀
alone! ⠀

Welcome to #ithrivenation!🍃
Ok I’ll play the 10 year challenge! My how my miracle baby that I was told I could never have because of lupus has grown! My solomon is 10 years old!  Oh yeah and I’ve aged too - 32 years old to to 42!

#goodbyelupus #goodbyeautoimmune #goodbyeautoimmunedisease #lupus #lupusawareness #lupusflare #lupuswarrior #lupusproblems #lupusnephritis #lupussucks #lupusfighter #lupusadvocate #autoimmunedisease #autoimmune  #sjogrenssyndrome #sjogrens #scleroderma #multiplesclerosis #celiac #lupusprotocol #autoimmuneprotocol #autoimmunediet #mixedconnectivetissuedisease #lupusdiet #smoothieshred #thomastadlock #psoriasis #psoriaticarthritis #opticneuritis #retinitis
I will forever love my kids snuggles...💜💜💜💜
#mommasgirl #minime  #snuggles #lovemybabies  #livingmybestlife #alabamagirl #midwestliving #minnesnowta  #minnesota #Lorelai #autoimmunediseasewarrior #autoimmunedisease #sjogrenssyndrome #perniciousanemia #chronicillness #chronickidneydisease #cbdoil #cbd #cbdmovement  #legalizemn #hopeful  #fighter
How many times has your pain patch fallen off and you tried to explain why you need a refill?? Exactly... I always had issues to get both the brand name and the generic patch to stick to me- for an entire week, even in 100 degree (40+Celsius) weather. 
The Tegaderm Film 1626W (got mine from Amazon in a pack of 50) is similar to the hospital style clear dressing that goes over IVs.
 It is much much MUCH gentler though despite sensitive skin. It is a clear frame style dressing that goes right over the pain patch and it can even cover my giant 20mcg/h patch. This is basically the only way to get the patch to stick-for a week. It’s not gonna win prizes in aesthetics, but it cuts the number of lost patches way down.
#gettingpainpatchtostick
#painpatch 
#buprenorphinepatch 
#tegadermfilm
#sjogrenssyndrome 
#autoimmunedisease 
#rheumatoidarthritis 
#thisissjögrens
#thisissjogrens 
#chronicillness 
#spoonie
#spoonielife 
#chronicpain
#chronicpainsucks 
#chronicpainsucksass
#fountainpen 
#fountainpenaddict
How many times has your pain patch fallen off and you tried to explain why you need a refill?? Exactly... I always had issues to get both the brand name and the generic patch to stick to me- for an entire week, even in 100 degree (40+Celsius) weather.
The Tegaderm Film 1626W (got mine from Amazon in a pack of 50) is similar to the hospital style clear dressing that goes over IVs.
It is much much MUCH gentler though despite sensitive skin. It is a clear frame style dressing that goes right over the pain patch and it can even cover my giant 20mcg/h patch. This is basically the only way to get the patch to stick-for a week. It’s not gonna win prizes in aesthetics, but it cuts the number of lost patches way down.
#gettingpainpatchtostick
#painpatch
#buprenorphinepatch
#tegadermfilm
#sjogrenssyndrome
#autoimmunedisease
#rheumatoidarthritis
#thisissjögrens
#thisissjogrens
#chronicillness
#spoonie
#spoonielife
#chronicpain
#chronicpainsucks
#chronicpainsucksass
#fountainpen
#fountainpenaddict
Forgot two things: write Christmas cards and slap on fresh pain patch. That is an absolute first as most of us know when *exactly* they can finally apply that fresh patch. 
I always had issues to get both the brand name and the generic patch to stick to me- for an entire week, even in 100 degree (40+Celsius) weather. The Tegaderm Film 1626W (got mine from Amazon) is similar to the hospital style clear dressing that goes over IVs. It is much much MUCH gentler though despite sensitive skin. It is a clear frame style dressing that goes right over the pain patch and it can even cover my giant 20mcg/h patch. 
I’ll write the Christmas cards tomorrow, at least I have the pens already waiting.
#painpatch 
#buprenorphinepatch 
#tegadermfilm
#sjogrenssyndrome 
#autoimmunedisease 
#rheumatoidarthritis 
#thisissjögrens
#thisissjogrens 
#chronicillness 
#spoonie
#spoonielife 
#chronicpain
#chronicpainsucks 
#chronicpainsucksass
#fountainpen 
#fountainpenaddict
Forgot two things: write Christmas cards and slap on fresh pain patch. That is an absolute first as most of us know when *exactly* they can finally apply that fresh patch.
I always had issues to get both the brand name and the generic patch to stick to me- for an entire week, even in 100 degree (40+Celsius) weather. The Tegaderm Film 1626W (got mine from Amazon) is similar to the hospital style clear dressing that goes over IVs. It is much much MUCH gentler though despite sensitive skin. It is a clear frame style dressing that goes right over the pain patch and it can even cover my giant 20mcg/h patch.
I’ll write the Christmas cards tomorrow, at least I have the pens already waiting.
#painpatch
#buprenorphinepatch
#tegadermfilm
#sjogrenssyndrome
#autoimmunedisease
#rheumatoidarthritis
#thisissjögrens
#thisissjogrens
#chronicillness
#spoonie
#spoonielife
#chronicpain
#chronicpainsucks
#chronicpainsucksass
#fountainpen
#fountainpenaddict
Awesome Thursday night ride at Oak Mountain State Park. #nighttimeistherighttime #oakmountainstatepark #mtblife #nightride #enjoytheparkafterdark #challengeyourlimits #sjogrenssyndrome #celiac #onekidney #veteranstrong
Met with my surgeon today and if I cannot live with the nerve pain, I can have my second level redone. Not really a choice as far as I’m concerned but I believe I need another opinion.
Met with my surgeon today and if I cannot live with the nerve pain, I can have my second level redone. Not really a choice as far as I’m concerned but I believe I need another opinion.
That bruise is last week’s Methotrexate injection. I got the stuff in, but the judges said my technique suuuucked.

I worked on my dart throwing wrist and despite this still life angle, this time I got that desired 45 degree angle, and things went in n out like buttah! Judges said 9.5. 
Hey. Are you out there? Bound to your home, or your bed? I know how it feels. Please hang in there. This is the first time since 2012 where I have hope again. Please have hope, too!

#sjogrenssyndrome 
#gratefulformethotrexate
#gratefulforchemo 
#gratefulforchemomeds
#autoimmunedisease 
#rheumatoidarthritis 
#thisissjögrens
#thisissjogrens 
#chronicillness 
#spoonie
#spoonielife 
#chronicpain
#chronicpainsucks 
#chronicpainsucksass
That bruise is last week’s Methotrexate injection. I got the stuff in, but the judges said my technique suuuucked.

I worked on my dart throwing wrist and despite this still life angle, this time I got that desired 45 degree angle, and things went in n out like buttah! Judges said 9.5.
Hey. Are you out there? Bound to your home, or your bed? I know how it feels. Please hang in there. This is the first time since 2012 where I have hope again. Please have hope, too!

#sjogrenssyndrome
#gratefulformethotrexate
#gratefulforchemo
#gratefulforchemomeds
#autoimmunedisease
#rheumatoidarthritis
#thisissjögrens
#thisissjogrens
#chronicillness
#spoonie
#spoonielife
#chronicpain
#chronicpainsucks
#chronicpainsucksass
When I was diagnosed with #keratoconus I was in college. I dropped out after the contacts for Keratoconus scratched my eyes and left me with 2 black eyes looking like a raccoon 🦝. My Dr did a tear test because he suspected I had either #lupus or #sjogrenssyndrome when the tear test showed I wasn’t producing tears he ordered blood work and after having a biopsy done to finalize the tests, I had both Lupus and Sjogrens. •
I didn’t go back to school, instead I fell into a deep depression. I cried daily, I started to #selfharm myself more and it took me years to pull myself out. I wouldn’t say I’m completely out, I’m just not as deep into my #depression hole as I used to be. •
I had dreams, I had goals, and I had to learn to let them go. I had to accept that my life was altered. My body was fighting against me and my mind was telling me I was useless, I was feeling low and like a waste of space. It’s taken me years to change my way of thinking, I still have my moments where I think I’m just a burden, but I have to remind myself that there are people who love me and care about me. •
My dreams and goals have changed, but I hope to accomplish them before my time is up. It’s a daily struggle to stay positive, but it is possible with a great support system behind you. •
Your story is important and will impact at least one person out there! •
•
•
#spoonie #spooniesupport #spoonielife #spoonies #spooniestrong #chronicillness #chronicpain #chronicfatigue #lupuswarrior #lupusawareness #mentalhealth #chronicillnessawareness #chronicpainawareness
When I was diagnosed with #keratoconus I was in college. I dropped out after the contacts for Keratoconus scratched my eyes and left me with 2 black eyes looking like a raccoon 🦝. My Dr did a tear test because he suspected I had either #lupus or #sjogrenssyndrome when the tear test showed I wasn’t producing tears he ordered blood work and after having a biopsy done to finalize the tests, I had both Lupus and Sjogrens. •
I didn’t go back to school, instead I fell into a deep depression. I cried daily, I started to #selfharm myself more and it took me years to pull myself out. I wouldn’t say I’m completely out, I’m just not as deep into my #depression hole as I used to be. •
I had dreams, I had goals, and I had to learn to let them go. I had to accept that my life was altered. My body was fighting against me and my mind was telling me I was useless, I was feeling low and like a waste of space. It’s taken me years to change my way of thinking, I still have my moments where I think I’m just a burden, but I have to remind myself that there are people who love me and care about me. •
My dreams and goals have changed, but I hope to accomplish them before my time is up. It’s a daily struggle to stay positive, but it is possible with a great support system behind you. •
Your story is important and will impact at least one person out there! •


#spoonie #spooniesupport #spoonielife #spoonies #spooniestrong #chronicillness #chronicpain #chronicfatigue #lupuswarrior #lupusawareness #mentalhealth #chronicillnessawareness #chronicpainawareness
This! #livingwithautoimmunedisease #livingwithpsoriaticarthritis #psoriaticarithritis #hashimotosdisease #sjogrenssyndrome #fibromyalgia #fibromyalgiathis #lupus #chronicpain #thursdayfeels #healing #healingjourney
Because wellness.... 🔥🔥🔥
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#lifelonglearner #mycomeback #momswhoinspire #nutritionaltherapy #autoimmunewellness #aip #healthtips #myautoimmunejourney #ntatraining #sjogrenssyndrome #takebakecontrol #keepfighting #autoimmunediseasewarrior 
#saferbeauty #beautyshouldbegoodforyou #wellnessjourney #momhacks #wellnesstips #ntp #foodismedicine
Posted @withrepost • @spoonies_united It’s funny cause it’s true🤦🏻‍♀️😂 #hellodoc #rememberme #canyouseeme #helpme #believeme #depression #anxiety #cptsd #spoonieproblems #spoonielife #abuse #survivor #chronicpain #invisibleillness #autoimmunedisease #butyoudontlooksick #spoonie #spoonies #spoonies_united #lupus #fibromyalgia #raynauds #sjogrenssyndrome #arthritis #spinalstenosis #facetarthritis #osteoarthritis #degenerativediscdisease
When you feel bad but you look fine  #confused #sjogrenssyndrome #chronicfatigue #chronicillness #chronicallyawesome

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