#sjogrens

I SLAYED Colorado. 🏔✨ I wanna make a video about travel tips for being alone and disabled. In the mountains my body felt so free and so much less painful and I had so much energy. I was worried I’d wear myself out but something just happened out there and I was beyond fine and didn’t even really crash when I got back aside from a day or two of wack sleep since my flight was a red eye and then I had a two hour drive home. I’m so proud of myself for conquering this. #lupus #lupuswarrior #lupusawareness #sle #sjogrenssyndrome #sjogrens #sjogrensawareness #sjogrenswarrior #autoimmunedisease #autoimmunewarrior #bipolar #bipolar1 #bipolarwarrior #bipolarawareness #gad #anxiety #scoliosis #scoliosisawareness #ibs #ptsd #ptsdawareness #chronicillness #chronicpain #chronicpainwarrior #chronicillnesswarrior #medical #medicine #mentalillness
I SLAYED Colorado. 🏔✨ I wanna make a video about travel tips for being alone and disabled. In the mountains my body felt so free and so much less painful and I had so much energy. I was worried I’d wear myself out but something just happened out there and I was beyond fine and didn’t even really crash when I got back aside from a day or two of wack sleep since my flight was a red eye and then I had a two hour drive home. I’m so proud of myself for conquering this. #lupus #lupuswarrior #lupusawareness #sle #sjogrenssyndrome #sjogrens #sjogrensawareness #sjogrenswarrior #autoimmunedisease #autoimmunewarrior #bipolar #bipolar1 #bipolarwarrior #bipolarawareness #gad #anxiety #scoliosis #scoliosisawareness #ibs #ptsd #ptsdawareness #chronicillness #chronicpain #chronicpainwarrior #chronicillnesswarrior #medical #medicine #mentalillness
LUPUS QUESTION
So I have a positive ANA test and high sed rate + another autoimmune disease. A doctor a year or two ago said they think I have lupus but they didn’t want to diagnose me unless more symptoms arose. Really struggling right now because my malar rash has NEVER been this bad. I’m seeing a rheumatologist soon but I wanted to ask if anyone has any tips to make it any better. Thank you 😫😫 I’m desperate
LUPUS QUESTION
So I have a positive ANA test and high sed rate + another autoimmune disease. A doctor a year or two ago said they think I have lupus but they didn’t want to diagnose me unless more symptoms arose. Really struggling right now because my malar rash has NEVER been this bad. I’m seeing a rheumatologist soon but I wanted to ask if anyone has any tips to make it any better. Thank you 😫😫 I’m desperate
I love road trips 😊
#lupus #autoimmune #chronicillness #invisibleillness #sjogrens #fibro #brainfog #insomnia #MentalHealth #anxiety #depression #strength #support #cure #hope #inkedbohemianfreespirit #stargazer #believerinmagik #survivor #warrior #alive
THIS JUST IN: I did a podcast talking about my experiences with illnesses and diagnoses. As well as about Common Health and what it means to me. 
Check it out - link in bio.

#commonhealthapp #liveinspired #wellnessjourney #wellpreneur #mindbodysoul #mindbodygram #undiagnised #invisbleillness  #warriors #outsidethebox #chronicillness #symptoms #wellness #illness #sick #nausea #thoughts #mystory #share #sjogrens #autoimmunedisease #potssyndrome #lupus #resolution #pain #depression #coping #spoonie
THIS JUST IN: I did a podcast talking about my experiences with illnesses and diagnoses. As well as about Common Health and what it means to me.
Check it out - link in bio.

#commonhealthapp #liveinspired #wellnessjourney #wellpreneur #mindbodysoul #mindbodygram #undiagnised #invisbleillness  #warriors #outsidethebox #chronicillness #symptoms #wellness #illness #sick #nausea #thoughts #mystory #share #sjogrens #autoimmunedisease #potssyndrome #lupus #resolution #pain #depression #coping #spoonie
Happy Sunday 😊
#lupus #autoimmune #chronicillness #invisibleillness #sjogrens #fibro #brainfog #insomnia #MentalHealth #anxiety #depression #strength #support #cure #hope #inkedbohemianfreespirit #stargazer #believerinmagik #survivor #warrior #alive
Great weekend of running! #ReindeerRun5k on Saturday followed by #HotChocolate15k today in #Tampa. Running season is finished for us for 2019. Looking forward to 2020 and all the new challenges!
Great weekend of running! #ReindeerRun5k on Saturday followed by #HotChocolate15k today in #Tampa. Running season is finished for us for 2019. Looking forward to 2020 and all the new challenges!
Day 4: I am looking forward to opening my Christmas present from my sister, mostly because she’s so adamant that I wait to open it lol.
#itsthesmallstuffchallenge
Day 4: I am looking forward to opening my Christmas present from my sister, mostly because she’s so adamant that I wait to open it lol.
#itsthesmallstuffchallenge
Moisyn Rinse: The perfect little stocking stuffer for a friend or loved one. Shop now at prisyna.com!⁠
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#moisyn #xerostomia #drymouth #stockingstuffer #christmasgift #spoonies #spooniestrong #autoimmunedisease #autoimmunewarrior #chronicillness #chronicpain #autoimmune #chronicillnessawareness #chronicwarrior #invisibleillness #chronicallyill #spoonie ⁠
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#sjogrens #sjogrenssyndrome⁠
Moisyn Rinse: The perfect little stocking stuffer for a friend or loved one. Shop now at prisyna.com!⁠
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#moisyn #xerostomia #drymouth #stockingstuffer #christmasgift #spoonies #spooniestrong #autoimmunedisease #autoimmunewarrior #chronicillness #chronicpain #autoimmune #chronicillnessawareness #chronicwarrior #invisibleillness #chronicallyill #spoonie

#sjogrens #sjogrenssyndrome⁠
#ChronicIllness #InvisibleIllness #InterstitialLungDisease #ILD #DoubleLungTranplant #FutureTransplantRecipient #LungTransplant #Lung #Lungs #RheumatoidArthritis #RA #Joints #Joint #Pain #ChronicPain #Inflammation #Sjogrens #ConnectiveTissueAutoimmuneDisease #ConnectiveTissueDisease #UCTD #UndifferentiatedConnectiveTissueDisease #GERD #HashimotosThyroiditis #Hashimotos #Hypothyroidism #VitaminDDeficiency #Depression #MajorDepressiveDisorder #Anxiety #OverIt
Decided to try to change up the smoothie flavor today...aiming for a citrus flava. It was meh...not awesome but not bad either. 🥬🍊🍋🍌
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#thisissjögrens | #sjogrensawareness | #sjogrenssyndrome | #sjogrens | #autoimmunedisease | #chronicillness | #chronicinflammation | #healingwithfood | #healingfoods | #healthyfood | #smoothie | #healingbody | #takebackyourhealth
Decided to try to change up the smoothie flavor today...aiming for a citrus flava. It was meh...not awesome but not bad either. 🥬🍊🍋🍌
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#thisissjögrens | #sjogrensawareness | #sjogrenssyndrome | #sjogrens | #autoimmunedisease | #chronicillness | #chronicinflammation | #healingwithfood | #healingfoods | #healthyfood | #smoothie | #healingbody | #takebackyourhealth
I really don’t know what I’ve done to have such little angels in my life! I’ve been unwell for years but only just been diagnosed with the systemic autoimmune disease, Sjogrens. I also have UCTD which means I have a unidentified overlap autoimmune disease. I have obviously been sad about it, and angry. How can I have a incurable disease and have been sooooo Ill since I was 17 and no one notice/care to look, it’s purely because my sister was diagnosed with the same disease that she and my mum started to *nag* me to get looked at better. Anyway, so my beautiful kind thoughtful gang put a survival pack together! I feel very loved and overwhelmed! If I had any tears in my sjogrens eyes, I’d cry!!!! #love #autoimmunedisease #sjogrens #sjogrensstrong #friendship #comfort #kindness #understanding
I really don’t know what I’ve done to have such little angels in my life! I’ve been unwell for years but only just been diagnosed with the systemic autoimmune disease, Sjogrens. I also have UCTD which means I have a unidentified overlap autoimmune disease. I have obviously been sad about it, and angry. How can I have a incurable disease and have been sooooo Ill since I was 17 and no one notice/care to look, it’s purely because my sister was diagnosed with the same disease that she and my mum started to *nag* me to get looked at better. Anyway, so my beautiful kind thoughtful gang put a survival pack together! I feel very loved and overwhelmed! If I had any tears in my sjogrens eyes, I’d cry!!!! #love #autoimmunedisease #sjogrens #sjogrensstrong #friendship #comfort #kindness #understanding
🌹👀 Hi I'm Kayla Arielle and I'm a prime example of the hashtag #butyoudontlooksick. I can't even chew food this morning because I had to use my mouth to open much-needed juice bottles yesterday since my hands can't do it at this time. My delicious eggs and toast have been in front of me for an hour now. I wish so much I could finish them already but can barely open my jaw. You can NOT know someone's story or current struggles with a look. 👀🌹
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🌀 I'm BOTH very happy from the last few days AND struggling greatly. I'm preparing to get back to running my lil businesses* BUT just conquered the first panic attack threat in a while. I feel more like myself than ever YET am forced into position to hold onto it for dear life again. 🌀
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💎 Dynamic. Multi-faceted. Ever-evolving. 💎
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🦋 Hi, I'm Kayla Arielle and I'm an example of human resilience and the same kind of overcoming strength that you were born with as well. 🦋
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🌞 All is well in my world. 🌞
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Photo 1 from 2018 💋 (Why is a good winged line so hard?!) 😁 Others from all kinds of random points from the past 10 years❣️
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* @thespooniesisterhood / @paintandbloom 💓
🌹👀 Hi I'm Kayla Arielle and I'm a prime example of the hashtag #butyoudontlooksick. I can't even chew food this morning because I had to use my mouth to open much-needed juice bottles yesterday since my hands can't do it at this time. My delicious eggs and toast have been in front of me for an hour now. I wish so much I could finish them already but can barely open my jaw. You can NOT know someone's story or current struggles with a look. 👀🌹
⠀⠀⠀⠀⠀⠀⠀⠀⠀
🌀 I'm BOTH very happy from the last few days AND struggling greatly. I'm preparing to get back to running my lil businesses* BUT just conquered the first panic attack threat in a while. I feel more like myself than ever YET am forced into position to hold onto it for dear life again. 🌀
⠀⠀⠀⠀⠀⠀⠀⠀⠀
💎 Dynamic. Multi-faceted. Ever-evolving. 💎
⠀⠀⠀⠀⠀⠀⠀⠀⠀
🦋 Hi, I'm Kayla Arielle and I'm an example of human resilience and the same kind of overcoming strength that you were born with as well. 🦋
⠀⠀⠀⠀⠀⠀⠀⠀⠀
🌞 All is well in my world. 🌞
⠀⠀⠀⠀⠀⠀⠀⠀⠀
Photo 1 from 2018 💋 (Why is a good winged line so hard?!) 😁 Others from all kinds of random points from the past 10 years❣️
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* @thespooniesisterhood / @paintandbloom 💓
I think this sums up living with autoimmune disease.
I think this sums up living with autoimmune disease.
That’s been my life lately. Especially trying to unpack everything, get ready for Christmas, and at the same time try to see family. When I get home from work, I’m exhausted mentally and physically.... just let me be...
#mythoughts #chronicillness #tired #justletmebe #fibromyalgia #depression #anxiety #invisibleillness #fibrogirl #livingwithpain #spoonie #fibrosucks #sjogrens #autoimmunewarrior #tryingtostaypositive #tryingtobestrong #hope
That’s been my life lately. Especially trying to unpack everything, get ready for Christmas, and at the same time try to see family. When I get home from work, I’m exhausted mentally and physically.... just let me be...
#mythoughts #chronicillness #tired #justletmebe #fibromyalgia #depression #anxiety #invisibleillness #fibrogirl #livingwithpain #spoonie #fibrosucks #sjogrens #autoimmunewarrior #tryingtostaypositive #tryingtobestrong #hope
🚨 HURRY🚨 🎄 today is the LAST day to order to get Christmas delivery 🚚 🍵 Place an order today (MUST be from the TIPSY TEA ParTEA) to have a chance to win a prize (currently $20 away from the next prize drawing) PLUS 🎁 Anyone who orders by tonight from my ParTEA will ALSO get at least one entry into my monthly giveaway. 
Question.. let me know! Link is in bio
🚨 HURRY🚨 🎄 today is the LAST day to order to get Christmas delivery 🚚 🍵 Place an order today (MUST be from the TIPSY TEA ParTEA) to have a chance to win a prize (currently $20 away from the next prize drawing) PLUS 🎁 Anyone who orders by tonight from my ParTEA will ALSO get at least one entry into my monthly giveaway.
Question.. let me know! Link is in bio
I’ve been in PHX for over a week and I’ve been sick 90% of the time. I’ve hardly seen anyone. All of my plans had to change to accommodate my illnesses and it’s such a harsh reality. I’m so thankful for the people I have seen. I was able to see all of my cousins that live in Arizona and I needed that more than they’ll ever know. Traveling makes me so ill. It effects my entire body; it takes 1000 spoons. I’m here for a few procedures and so far I’ve figured out that my #gastroparesis is in full swing. I’ve had trouble holding food down with crazy episodes of pain since April. It’s so hard to stay positive when your body is literally killing itself. My friend @maggirene made me this and gave it to me yesterday when her and @riverwoman_ came up to sit with me for a few hours. I had been having some major break downs this trip and this work means so much to me. It’s finely cut and layered paper and it’s so beautiful and detailed. I’m still crying looking at it.  To everyone who’s suffering and fighting; I’m here with you. #spoonie #gastroparesis #celiac #hashimotosthyroiditis #t1d #sjogrens #mcas #pots #mastcellactivationdisorder #primarysjögrens #typeonediabetes #endometriosis #autonomicneuropathy #autonomicdysfunction
I’ve been in PHX for over a week and I’ve been sick 90% of the time. I’ve hardly seen anyone. All of my plans had to change to accommodate my illnesses and it’s such a harsh reality. I’m so thankful for the people I have seen. I was able to see all of my cousins that live in Arizona and I needed that more than they’ll ever know. Traveling makes me so ill. It effects my entire body; it takes 1000 spoons. I’m here for a few procedures and so far I’ve figured out that my #gastroparesis is in full swing. I’ve had trouble holding food down with crazy episodes of pain since April. It’s so hard to stay positive when your body is literally killing itself. My friend @maggirene made me this and gave it to me yesterday when her and @riverwoman_ came up to sit with me for a few hours. I had been having some major break downs this trip and this work means so much to me. It’s finely cut and layered paper and it’s so beautiful and detailed. I’m still crying looking at it. To everyone who’s suffering and fighting; I’m here with you. #spoonie #gastroparesis #celiac #hashimotosthyroiditis #t1d #sjogrens #mcas #pots #mastcellactivationdisorder #primarysjögrens #typeonediabetes #endometriosis #autonomicneuropathy #autonomicdysfunction
[Day 6] Post Port Placement
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De-accessed. And yes....I am bruised from my port procedure. I am Asian ethnicity so with my skin type, sometimes it’s hard to tell.
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#portplacement #portacath #chronicillness #centralline #ehlersdanlossyndrome #eds #mcas #mastcellactivationsydrome #pots #posturalorthostatictachycardia #hyperpots #lupus #sjogrens #dysautonomia #authoimmunewarrior #butyoudontlooksick
[Day 6] Post Port Placement
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De-accessed. And yes....I am bruised from my port procedure. I am Asian ethnicity so with my skin type, sometimes it’s hard to tell.
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#portplacement #portacath #chronicillness #centralline #ehlersdanlossyndrome #eds #mcas #mastcellactivationsydrome #pots #posturalorthostatictachycardia #hyperpots #lupus #sjogrens #dysautonomia #authoimmunewarrior #butyoudontlooksick
thoughts?
thoughts?
My #sundaylunch spot is looking pretty good!! Friday's dinner has been a great weekend lunch while I finished shopping, visited with friends, wrapping and batch cooking. #paleo #aipreintro #eatrealfoods #autoimmunewarrior #sjogrenswarrior #sjogrens
My #sundaylunch spot is looking pretty good!! Friday's dinner has been a great weekend lunch while I finished shopping, visited with friends, wrapping and batch cooking. #paleo #aipreintro #eatrealfoods #autoimmunewarrior #sjogrenswarrior #sjogrens
Say NO more! #sjogrens #xanaxiety #xmas2019

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